Survey on knowledge regarding patient version of guidelines among clinical practice guideline developers in China_Chinese Journal of Evidence-Based Medicine

Authors：

WANG Xiaoqin ^1,2,3,4 ^# , XIAO Yujie ⁵ ^# , MA Yanfang ^1,4 , LIU Lian ⁵ , WANG Zijun ⁵ , DU Yali ⁵ , TONG Yajing ⁶ , WANG Hao ² , YAO Liang ⁷ ,  CHEN Yaolong ^1,4 ,  YANG Kehu ^1,2,3,4

1. Evidence-Based Medicine Center, School of Basic Medical Sciences, Lanzhou University, Lanzhou, 730000, P.R.China;
2. Chinese GRADE Center, Lanzhou University, Lanzhou, 730000, P.R.China;
3. Key Laboratory of Evidence-Based Medicine and Knowledge Translation of Gansu Province, Lanzhou, 730000, P.R.China;
4. WHO Collaborating Centre for Guideline Implementation and Knowledge Translation, Lanzhou, 730000, P.R.China;
5. The Second Medical School of Lanzhou University, Lanzhou, 730000, P.R.China;
6. School of Public Health of Lanzhou University, Lanzhou, 730000, P.R.China;
7. Gansu Provincial Hospital Clinical Evidence Based Medical Research Institute, Lanzhou, 730000, P.R.China;

Corresponding?author：

CHEN Yaolong, Email: chenyaolong21@163.com; YANG Kehu, Email: kehuyangebm2006@126.com

Keywords：

Patient version of guidelines (PVG); Guideline Developer; Awareness; Survey

DOI：

10.7507/1672-2531.201804032

Video：

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Objectives To investigate the awareness and knowledge of Chinese guideline developers on the patient version of guidelines (PVG).Methods A questionnaire was developed and distributed to participants of the guideline development workshop on the " 2017 Chinese Medical Doctor Association Annual Conference on Evidence-Based Medicine & Gansu Medical Doctor Association/ Gansu Medical Association Annual Conference on Evidence-Based Medicine”, and guideline developers in Shenzhen, Guangzhou, Xi’an, Beijing and other places were investigated through field surveys. The questionnaire included ten questions centred on respondents’ awareness and their views on the development of PVG. After the invalid questionnaire was excluded, Excel 2013 software was used for data entry, and SPSS 19.0 software was used for data analysis.Results 150 questionnaires were distributed and 107 (71.3%) were collected, from which 90 (60.0%) questionnaires with complete response were analyzed. For the awareness of PVG: 30.0% of respondents chose " just know it without more knowledge”, 34.4% chose " never heard of”. The awareness was not associated with educational or departmental background, majors and regions (P>0.05). For opinions on PVG and its development process: 86.7% of the respondents thought PVG is necessary, 90% thought the presentation of PVG needs to follow reporting standards, and 45.6% thought the primary barrier of the development of PVG is lack of cognition.Conclusions Research work on PVGs is at an initial stage in China. The awareness among Chinese guideline developers and relevant researchers is lacking and the development methodology requires further exploration. Carrying out research relevant to PVG can promote its development and application in China, so as to improve the clinical practice.

Citation： WANG Xiaoqin, XIAO Yujie, MA Yanfang, LIU Lian, WANG Zijun, DU Yali, TONG Yajing, WANG Hao, YAO Liang, CHEN Yaolong, YANG Kehu. Survey on knowledge regarding patient version of guidelines among clinical practice guideline developers in China. Chinese Journal of Evidence-Based Medicine, 2019, 19(1): 12-17. doi: 10.7507/1672-2531.201804032 Copy

1.	胡雁. 用循證護理的觀念評估" 臨床實踐指南”. 護士進修雜志, 2005, 20(4): 309-311.
2.	趙靜. 醫患關系與病人權益. 中醫藥管理雜志, 2007, 15(12): 930-931.
3.	袁一君, 顏美瓊. 患者參與醫療護理決策現狀及影響因素研究進展. 護理學雜志, 2013, 28(5): 93-96.
4.	Légaré F, Boivin A, Weijden TVD, et al. Patient and public involvement in clinical practice guidelines a knowledge synthesis of existing programs. Med Decis Making, 2011, 31(6): E45-74.
5.	Hm VDB, Zuiderent-Jerak T. An empirical study of patient participation in guideline development: exploring the potential for articulating patient knowledge in evidence-based epistemic settings. Health Expect, 2015, 18(5): 942-945.
6.	Kryworuchko J, Stacey D, Bai N, et al. Twelve years of clinical practice guideline development, dissemination and evaluation in Canada (1994 to 2005). Implement Sci, 2009, 4(1): 49.
7.	肖淑君, 高玉婷, 王小琴, 等. 患者指南及其制訂方法介紹. 藥品評價, 2017, 14(6): 44-48.
8.	李艷, 陳耀龍, 陳靜, 等. 心肌梗死二級預防非藥物措施患者指南的研制思路. 中國循證醫學雜志, 2016, 16(5): 617-620.
9.	張瓊文, 萬曉莉, 劉穎, 等. 病人參與臨床決策現狀調查與分析. 中國循證醫學雜志, 2010, 10(1): 10-13.
10.	解染, 陳耀龍, 陳昊, 等. 循證指南制定中患者價值觀和偏好的研究方法. 中國循證醫學雜志, 2015, 15(5): 586-591.
11.	Equator network. Reporting items for public version of guidelines: RIGHT-PVG. Available at: http://www.equator-network.org/library/reporting-guidelines-under-development/#84.
12.	姜雨婷, 田潤溪, 段思柳, 等. 對糖尿病高危足患者指南制定的思考. 中國護理管理, 2016, 16(12): 1628-1632.
13.	王小琴, 童雅婧, 何江華, 等. 患者指南制訂的基本原則和方法(一). 中國循證兒科雜志, 2017, 12(6): 476-478.
14.	Wang X, Xiao S, Gao Y, et al. Who is responsible for developing patient guidelines? Available at: https://www.globalevidencesummit.org/abstracts/who-responsible-developing-patient-guidelines.
15.	Loudon K, Santesso N, Callaghan M, et al. Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses. BMC Health Serv Res, 2014, 14(1): 321.
16.	Santesso N, Morgano GP, Jack SM, et al. Dissemination of clinical practice guidelines: a content analysis of patient versions. Med Decis Making, 2016, 36(6): 692-702.
17.	Health NCCFM. Depression: the treatment and management of depression in adults (updated edition). 2010.
18.	Brouwers MC, Vukmirovic M, Spithoff K, et al. Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study. BMC Health Serv Res, 2017, 17(1): 186.
19.	Rgn GMC, Dphil PSB. Patient-controlled analgesia: what information does the patient want? J Adv Nurs, 2002, 39(5): 459-471.
20.	陳耀龍, 姚亮, 王琪, 等. 甘肅省皋蘭縣基層醫務工作者對臨床實踐指南的認知、態度與行為調查. 中國循證醫學雜志, 2014, 14(6): 674-677.
21.	胡晶, 陳茹, 謝雁鳴, 等. 科學和規范的改編臨床實踐指南. 中國循證兒科雜志, 2012, 7(3): 226-230.
22.	Schaefer C. How to develop patient versions of guidelines. Guidelines International Network (GIN). GIN public toolkit: patient and public involvement in guidelines. Berlin: GIN office, 2012: 52-59.

1. 胡雁. 用循證護理的觀念評估" 臨床實踐指南”. 護士進修雜志, 2005, 20(4): 309-311.
2. 趙靜. 醫患關系與病人權益. 中醫藥管理雜志, 2007, 15(12): 930-931.
3. 袁一君, 顏美瓊. 患者參與醫療護理決策現狀及影響因素研究進展. 護理學雜志, 2013, 28(5): 93-96.
4. Légaré F, Boivin A, Weijden TVD, et al. Patient and public involvement in clinical practice guidelines a knowledge synthesis of existing programs. Med Decis Making, 2011, 31(6): E45-74.
5. Hm VDB, Zuiderent-Jerak T. An empirical study of patient participation in guideline development: exploring the potential for articulating patient knowledge in evidence-based epistemic settings. Health Expect, 2015, 18(5): 942-945.
6. Kryworuchko J, Stacey D, Bai N, et al. Twelve years of clinical practice guideline development, dissemination and evaluation in Canada (1994 to 2005). Implement Sci, 2009, 4(1): 49.
7. 肖淑君, 高玉婷, 王小琴, 等. 患者指南及其制訂方法介紹. 藥品評價, 2017, 14(6): 44-48.
8. 李艷, 陳耀龍, 陳靜, 等. 心肌梗死二級預防非藥物措施患者指南的研制思路. 中國循證醫學雜志, 2016, 16(5): 617-620.
9. 張瓊文, 萬曉莉, 劉穎, 等. 病人參與臨床決策現狀調查與分析. 中國循證醫學雜志, 2010, 10(1): 10-13.
10. 解染, 陳耀龍, 陳昊, 等. 循證指南制定中患者價值觀和偏好的研究方法. 中國循證醫學雜志, 2015, 15(5): 586-591.
11. Equator network. Reporting items for public version of guidelines: RIGHT-PVG. Available at: http://www.equator-network.org/library/reporting-guidelines-under-development/#84.
12. 姜雨婷, 田潤溪, 段思柳, 等. 對糖尿病高危足患者指南制定的思考. 中國護理管理, 2016, 16(12): 1628-1632.
13. 王小琴, 童雅婧, 何江華, 等. 患者指南制訂的基本原則和方法(一). 中國循證兒科雜志, 2017, 12(6): 476-478.
14. Wang X, Xiao S, Gao Y, et al. Who is responsible for developing patient guidelines? Available at: https://www.globalevidencesummit.org/abstracts/who-responsible-developing-patient-guidelines.
15. Loudon K, Santesso N, Callaghan M, et al. Patient and public attitudes to and awareness of clinical practice guidelines: a systematic review with thematic and narrative syntheses. BMC Health Serv Res, 2014, 14(1): 321.
16. Santesso N, Morgano GP, Jack SM, et al. Dissemination of clinical practice guidelines: a content analysis of patient versions. Med Decis Making, 2016, 36(6): 692-702.
17. Health NCCFM. Depression: the treatment and management of depression in adults (updated edition). 2010.
18. Brouwers MC, Vukmirovic M, Spithoff K, et al. Understanding optimal approaches to patient and caregiver engagement in the development of cancer practice guidelines: a mixed methods study. BMC Health Serv Res, 2017, 17(1): 186.
19. Rgn GMC, Dphil PSB. Patient-controlled analgesia: what information does the patient want? J Adv Nurs, 2002, 39(5): 459-471.
20. 陳耀龍, 姚亮, 王琪, 等. 甘肅省皋蘭縣基層醫務工作者對臨床實踐指南的認知、態度與行為調查. 中國循證醫學雜志, 2014, 14(6): 674-677.
21. 胡晶, 陳茹, 謝雁鳴, 等. 科學和規范的改編臨床實踐指南. 中國循證兒科雜志, 2012, 7(3): 226-230.
22. Schaefer C. How to develop patient versions of guidelines. Guidelines International Network (GIN). GIN public toolkit: patient and public involvement in guidelines. Berlin: GIN office, 2012: 52-59.

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