ObjectiveTo explore the real experiences of women of childbearing age with epilepsy during their reproductive decision-making process, and to provide a basis for clinical practitioners in managing the reproductive decision-making of this group of women and implementing decision support. MethodsSixteen women of childbearing age with epilepsy who were hospitalized in the Epilepsy Center of Beijing Tiantan Hospital, Capital Medical Universityi in Beijing from April 2024 to June 2024 were selected through purposive sampling. The Colaizzi phenomenological data analysis method was employed, and the data were organized and analyzed with the aid of Nvivo 11.0 software to extract themes. ResultsThree themes and eight sub-themes were extracted: The majority of patients had reproductive demands (personal role expectations, family and social pressure), Uncertainties in reproductive behaviors and outcomes (uncertainties in the pregnancy process caused by the disease, uncertainties in the reproductive outcome caused by the disease), and Encountering reproductive decision-making predicaments (lack of professional knowledge, conflicting information from different channels, multiple factors influencing reproductive decision-making, and various negative experiences associated with decision-making). ConclusionThe majority of women of childbearing age with epilepsy have reproductive needs and encounter decision-making predicaments. Medical staff should pay attention to their true experiences, offer adequate support and assistance, and help patients extricate themselves from the decision-making predicament to make scientific and rational decisions.
ObjectiveTo develop the setup components for epilepsy specialist nursing clinics and construct a corresponding nursing quality indicator system, thereby providing a scientific and quantitative basis for the establishment of such clinics and the evaluation of nursing quality. MethodsThe study adopted literature analysis, the Delphi method, and the analytic hierarchy process to systematically formulate the setup components for epilepsy specialist nursing clinics and to develop the nursing quality indicator system. The setup components were established through multiple rounds of expert consultation, while the quality indicator system was constructed based on the“Structure-Process-Outcome”three-dimensional quality model, with indicators and their weights determined stepwise. ResultsThe effective response rates for the two rounds of expert correspondence were both 100%, with an expert authority coefficient of 0.897. The coefficients of variation for the clinic setup components and nursing quality indicators were 0~0.231, 0~0.201 and 0.054~0.156, 0.049~0.188, respectively. The Kendall's harmony coefficients were 0.234, 0.291 and 0.268, 0.377 (P<0.01). The finalized setup components for epilepsy specialist nursing clinics comprise 10 dimensions, while the nursing quality evaluation indicator system includes 3 first-level indicators, 11 second-level indicators, and 42 third-level indicators. ConclusionThe developed setup components for epilepsy specialist nursing clinics and nursing quality evaluation indicators are scientifically sound, comprehensive in content, and highly specialized, which can serve as a reference for the management and development of epilepsy nursing clinics.